Caregiver Burden of People with Schizophrenia: a concept analysis

Indra Gunawan(1*), Xuan-Yi Huang(2), Nia Restiana(3), Rossy Rosnawanty(4), Saryomo Saryomo(5), Miftahul Falah(6)


(1) Faculty of Health and Science, Universitas Muhammadiyah Tasikmalaya; Department of Nursing, National Taipei University of Nursing and Health Sciences, Taiwan
(2) School of Nursing, National Taipei University of Nursing and Health Sciences, Taiwan
(3) Faculty of Health and Science, Universitas Muhammadiyah Tasikmalaya
(4) Faculty of Health and Science, Universitas Muhammadiyah Tasikmalaya
(5) Faculty of Health and Science, Universitas Muhammadiyah Tasikmalaya
(6) Faculty of Health and Science, Universitas Muhammadiyah Tasikmalaya
(*) Corresponding Author

Abstract


The term burden of care has been widely used in current nursing reference sources, but the definition of the concept of the burden of caring for caregivers of people with Schizophrenia has never been studied. Therefore, this article aims to analyze and provide relevant information related to the caregiver burden of people with Schizophrenia. This literature study uses an electronic article search tool from several online database sources such as (CINAHL (Cumulative Index for Nursing and Allied Health), PubMed, Google Scholar, Cochrane Library), health official websites (both non-government or government), and dictionaries. This analytical study adopts the principles of Walker and Avant to identify the attributes, antecedents, and consequents of this concept. This study has identified the attributes, antecedents, and consequences of the concept of caregiver burden of people with Schizophrenia. The attributes include Unequal distribution of responsibilities, persistent fatigue, and perception. Meanwhile, the antecedents are a lack of formal and informal social support, the conflict of various duties, and limited social activities. The last, in this study, has revealed the concept's negative consequences, including decreased quality of care, poor quality of life, and physical and psychological problems. A clear understanding of the caregiver burden of people with Schizophrenia has been defined. The results of this study can be used as a knowledge base for scientific development to improve the quality of nursing interventions, especially for caregivers of people with Schizophrenia.


Keywords


Caregiver Burden; Mental disorder; Schizophrenia

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References


Adelman, RD, et al. (2014). "Career burden: a clinical review." Hours 311(10): 1052-1060.

Annisa, F. (2016). "The burden of family caregivers." Belitung Journal of Nursing 2(1): 10-18.

Archbold, PG, et al. (1995). "The PREP nursing intervention system: Pilot test with families caring for older members." Nursing & Health Research 18(1): 3-16.

Ayres, VE (2008). Caregiver and Caregiver Expenses. Encyclopedia of Aging and Public Health. SJD Loue and M. Sajatovic. Boston, MA, Springer US: 193-196.

Bedard, M., Pedlar, D., Martin, NJ, Malott, O., & Stones, MJ (2000). The burden on caregivers of cognitively impaired adults living in the community: Methodological issues and determinants. International Psychogeriatrics, 12, 307–332

Bekdemir, A., & Ilhan, N. (2019). Predictors of caregiver burden in caregivers of bedridden patients. Journal of Nursing Research, 27(3), e24.

Caqueo-Urízar, A., et al. (2009). "Quality of life in caregivers of patients with schizophrenia: a review of the literature." Health outcomes and quality of life 7(1): 84.

Chan, SW-c. (2011). "Global perspectives on the burden of family caregivers for people with schizophrenia." Archives of psychiatric nursing 25(5): 339-349.

Choi, S. and J. Seo (2019). Carrier burden analysis in palliative care: An integrated review. Nursing forum, Wiley Online Library.

Connell, CM, Janevic, RR, & Gallant, MP (2001). Cost of care: Impact of dementia on family caregivers. Journal of Geriatric Psychiatry and Neurology, 14, 179–187.

Coppel, DB, et al. (1985). "Relationships of cognition associated with coping reactions to depression in caregivers of spouses of Alzheimer's disease patients." Cognitive Therapy and Research 9(3): 253-266.

Darwin, P., et al. (2013). "Emotional Burden and Expression Among Caregivers of Schizophrenia Patients in Mental Health Hospitals." Journal of the Indonesian Doctors Association 63(02).

Farran, CJ, et al. (2004). "Alzheimer's disease parenting information and skills. Part II: problems and concerns of family caregivers." Nursing & Health Research 27(1): 40-51.

Gitterman, A. (Ed.). (2014). A handbook of social work practice with vulnerable and resilient populations. Columbia University Press.

Given, B., et al. (2006). "Effect of providing symptom management assistance on caregiver reactions: results of a randomized trial." Journal of pain and symptom management 32(5): 433-443.

Given, CW, Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). Caregiver reaction assessment (CRA) for caregivers for people with chronic physical and mental disorders. Nursing & health research, 15(4), 271-283.

Hartnett, J., et al. (2016). "Career burden in end-stage ovarian cancer." Journal of clinical nursing oncology 20(2): 169.

Im Song, J., et al. (2011). "Quality of life and mental health in family caregivers of patients with terminal cancer." Supportive care in cancer 19(10): 1519.

Kawachi, I., & Berkman, LF (2001). Social bonds and mental health. Journal of Urban Health, 78(3), 458-467.

Kuipers, E. (2010). Time for a separate psychosis caregiver service? Journal of Mental Health, 19(5), 401– 404.

Marks, NF, Lambert, JD, & Choi, H. (2002). Transition to parenting, gender, and psychological well-being: A prospective US national study. Journal of Marriage and Family, 64, 657–667. doi: 10.1111/j.1741-3737.2002.00657.x

Mc Donnell, E., & Ryan, A. (2013). Parenting of men in dementia: A review and comments. Dementia (London, England), 12, 238–250. doi:10.1177/1471301211421235

Mellon, S. and LL Northouse (2001). "Family survival and quality of life after cancer diagnosis." Nursing & Health Research 24(6): 446-459.

Pearlin, L., Mullan, J., Semple, S., & Skaff, M. (1990). Parenting and stress processes: A review of their concepts and actions. Gerontologist, 30(5), 583–594

Pinquart, M., & Sörensen, S. (2006). Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. Journal of Gerontology. Series B, Psychology and Social Sciences, 61, P33–P45. doi:org/10.1093/geronb/61.1.P33

Rodakowski, J., et al. (2013). "Does social support impact depression in caregivers of aging adults with spinal cord injuries?" Clinical rehabilitation 27(6): 565-575.

Roth, DL, Fredman, L., & Haley, WE (2015). Informal Caregiving and Its Impact on Health: A Reassessment From a Population-Based Study. Gerontologists [Internet], 55(2), 309-319.

Schrank, B., et al. (2016). "Gender differences in caregiver burden and its determinants in terminally ill cancer patient family members." Psycho-Oncology 25(7): 808-814.

Shiba, K., Kondo, N., & Kondo, K. (2016). Informal and formal social support and caregiver burden: the AGES caregiver survey. Journal of epidemiology, 26(12), 622-628.

Sisk, RJ (2000). "Career burden and health promotion." International journal of nursing studies 37(1): 37-43.

Small, N., et al. (2010). "Carer burden in schizophrenia: considerations for nursing practice: Neil Small and colleagues describe a study showing how differently families of people with mental health problems and health professionals view the role of caregivers." Mental Health Practice 14(4): 22-26.

Stamataki, Z., et al. (2014). "Chronicles of informal caregiving in cancer: using 'The Cancer Family Caregiving Experience' model as an explanatory framework." Supportive care in cancer 22(2): 435-444.

Tebb, S. (2000). Caregiver Isolation: An Ecological Model. J Gerontol Soc Work, 34(2), 37-41.

Thoits, PA (2011). Mechanisms linking social bonds and support to physical and mental health. Journal of health and social behavior, 52(2), 145-161.

Walker LO, Avant KC. Strategies for theory construction in nursing. Sixth edition. Boston: Pearson, Prentice Hall; 2019

Yoon, S.-J., et al. (2014). "Modifiable factors related to caregiver burden among family caregivers of terminally ill Korean cancer patients." Supportive care in cancer 22(5): 1243-1250.

Walker LO, Avant KC. Strategies for theory construction in nursing. Sixth edition. Boston: Pearson, Prentice Hall; 2019

World Health Organization. (2019). Schizophrenia. Available from:https://www.who.int/news-room/fact-sheets/detail/schizophrenia

Yee, JL, & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: review and analysis. Gerontologist, 40, 147–164. doi:10.1093/geront/40.2.147

Zarit S, Reever K, Bahc-Peterson J. Relatives of impaired elderly: correlates with feelings of burden. Gerontol 1980;20:649e55. https://doi.org/10.1093/geront/20.6.649


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DOI: https://doi.org/10.26714/seanr.5.2.2023.12-22

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