Nurses’ Experiences in Communicating with Parents of children in End-of-Life Care (EOLC) in The Pediatric Intensive Care Unit (PICU)
(1) Universitas Diponegoro
(2) Universitas Diponegoro
(3) Universitas Diponegoro
(4) Universitas Diponegoro
(*) Corresponding Author
Abstract
Comprehensive therapeutic communication plays a crucial role in delivering nursing care during the end-of-life (EOL) phase. This study aims to investigate nurses' encounters with communication in end-of-life care (EOLC) within the Pediatric Intensive Care Unit (PICU). A qualitative descriptive study was carried out at a general hospital's Pediatric Intensive Care Unit (PICU). In-depth interviews were conducted with 15 participants, selected through purposive sampling with the assistance of the Head Nurse. The inclusion criteria comprised nurses with at least 5 years of experience in the PICU who had provided end-of-life (EOL) care to patients. Thematic analysis was employed to develop the qualitative data's thematic structures in this study. The analysis of the entire data has revealed three themes: (1) Nurses adapt communication according to the family's psychological state (2) physical touch as an aspect of caring, and (3) spiritual approach. Communication during end-of-life (EOL) nursing presents difficulties due to constraints such as time constraints and the emotional state of the family, posing challenges for nurses.
Keywords
Full Text:
PDFReferences
Aamir M, Mittal K, Kaushik JS, Kashyap H, Kaur G. Predictors of Stress Among Parents in Pediatric Intensive Care Unit: A Prospective Observational Study. Indian Journal of Pediatrics 2014;81:1167–70. https://doi.org/10.1007/s12098-014-1415-6.
Alzawad Z, Lewis FM, Kantrowitz-Gordon I, Howells AJ. A qualitative study of parents’ experiences in the pediatric intensive care unit: Riding a roller coaster. Journal of Pediatric Nursing 2020;51:8–14. https://doi.org/10.1016/j.pedn.2019.11.015.
Butler AE, Copnell B, Hall H. When a Child Dies in the PICU: Practice Recommendations From a Qualitative Study of Bereaved Parents. Pediatric Critical Care Medicine 2019;20:E447–51. https://doi.org/10.1097/PCC.0000000000002040.
Mensah ABB, Nunoo H, Mensah KB, Okyere J, Dzomeku VM, Apiribu F, et al. Impact of childhood and adolescence cancer on family caregivers: a qualitative analysis of strains, resources and coping behaviours. BMC Psychology 2023;11:1–11. https://doi.org/10.1186/s40359-023-01406-w.
Bennett RA, LeBaron VT. Parental perspectives on roles in end-of-life decision making in the pediatric intensive care unit: An integrative review. Journal of Pediatric Nursing 2019;46:18–25. https://doi.org/10.1016/j.pedn.2019.02.029.
Saad R, Kurdahi LB, Yazbick-Dumit N, Irani C, Muwakkit S. Paediatric oncology providers’ perspectives on early integration of paediatric palliative care. International Journal of Palliative Nursing 2020;26:100–9. https://doi.org/10.12968/ijpn.2020.26.3.100.
van den Hoogen A, Ketelaar M. Parental involvement and empowerment in paediatric critical care: Partnership is key! Nursing in Critical Care 2022;27:294–5. https://doi.org/10.1111/nicc.12727.
Nugroho K, Auliya NI. Relationship between Nurses’ Therapeutic Communication and Family Anxiety Level of Patients Experiencing Emergency Conditions. Babali Nursing Research 2024;5:423–32. https://doi.org/10.37363/bnr.2024.52303.
Mendes AP. Uncertainty in critical illness and the unexpected: important mediators in the process of nurse-family communication. Escola Anna Nery 2020;24:1–9. https://doi.org/10.1590/2177-9465-ean-2019-0056.
Arredondo O, Day M, Martens SA, Romanowski KS, Sen S, Palmieri TL, et al. Improving Parent Communication With Family Rounds In The Pediatric Critical Care Unit ( PICU ) Quality Improvement of the Road Rash Patient S 196 American Burn Association 54 th Annual Meeting 2022:777.
Drago MJ, Aronson PL, Madrigal V, Yau J, Morrison W. Are family characteristics associated with attendance at family centered rounds in the PICU? Pediatric Critical Care Medicine 2013;14:13–5. https://doi.org/10.1097/PCC.0b013e31827129cc.
Gilmer MJ, Foster TL, Bell CJ, Mulder J, Carter BS. Parental Perceptions of Care of Children at End of Life. American Journal of Hospice and Palliative Medicine 2013;30:53–8. https://doi.org/10.1177/1049909112440836.
Mu PF, Tseng YM, Wang CC, Chen YJ, Huang SH, Hsu TF, et al. Nurses’ Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review. Nursing Science Quarterly 2019;32:12–22. https://doi.org/10.1177/0894318418807936.
Cole MA, Foito K. Pediatric End-of-life Simulation: Preparing the Future Nurse to Care for the Needs of the Child and Family. Journal of Pediatric Nursing 2019;44:e9–12. https://doi.org/10.1016/j.pedn.2018.09.005.
Khraisat OM, Alakour NA, O’Neill TM. Pediatric end-of-life care barriers and facilitators: Perception of nursing professionals in Jordan. Indian Journal of Palliative Care 2017;23:199–206. https://doi.org/10.4103/0973-1075.204232.
Article Metrics
Abstract view : 19 timesPDF - 1 times
DOI: https://doi.org/10.26714/mki.8.3.2025.209-214
Refbacks
- There are currently no refbacks.
Copyright (c) 2025 Elsa Naviati, Nana Rochana, Reni Sulung Utami, Etty Nurul Afidah

This work is licensed under a Creative Commons Attribution 4.0 International License.
This journal is indexed by:
Kedungmundu Raya No. 18 Semarang NRC Building Universitas Muhammadiyah Semarang
Phone: 02476740287
Fax: 02476740287
Email: mki@unimus.ac.id



















